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FEVR doctor or families with the disease in Frankfurt? (Antwort)

rop — Fri, 02 Dec 2016 12:54:55 +0000

Hi Gjmaeda,
welcome to this forum!

Just below the title of this page, take the white search function field and type in FEVR. Perhaps you may find some ideas how to deal with that (in German - perhaps you may know s.o. who can translate for you).

I have no personal information, but I think, this clinic

http://www.uni-augenklinik-frankfurt.de

should be able to examine your cases.

Best regards,
rop

FEVR doctor or families with the disease in Frankfurt?

gjmaeda — Thu, 01 Dec 2016 01:29:37 +0000

Sorry I dont speak German. My daughter and I were diagnosed with FEVR and we live in Germany. I live close to FRankfurt and need to find a retinal doctor who treats FEVR. Does anyone have a recommendation?

I am totally lost, not only the disease is rare but I dont speak the language, so any help is very much appreciated. If anyone here lives around Frankfurt/Darmstadt and would be able to meet so that we can exchange experiences I would be very glad.

Thank you,
gjmaeda